~ Poems of Love ~

The following poems have been written by me, for my husband Hamada, who suffered from Multiple Myeloma [IgG Kappa] a cancer of the plasma cells, which are found in the bone marrow. After many months of chemotherapy, contracting pneumonia twice, once given only twelve hours to live and having three bad fractures to his spine and also showing in his Pelvis, he made it to four years seven months. The Multiple Myeloma attacked his Kidneys first showing at diagnosis in May 2006 leaving Hamada only a small percentage of kidney function. He never complained, using his most amazing smile even when I knew he had severe pain. Hamada underwent a Stem Cell Transplant using his own 'harvested stem cells' . During October 2007 he spent seventeen days in the "Centre For Clinical Haematology" at Nottingham City Hospital UK. where he achieved this transplant. We had a scare at six months after transplant, when told 'the beast was back' but subsequent tests showed a partial remission. Again in early 2009 it was confirmed that Hamada was out of remission He fought again during 2010 with newer chemo type drugs. First with Velcade and then with Revlimid but to no avail. His Kidneys were failing further and Hamada chose not to have dialysis. This blog contains poems and updates, written for Hamada, telling of our life together.
Now a beautiful book has been published, see http://www.susiehemingway.com/books/
showing Hamada's personal fight against Multiple Myeloma in the first fifty 'poems of love' written by me his wife. I hope you like these poems of love and also 'our story' dedicated to Hamada, who passed away peacefully at home on 23 November 2010 after a most courageous fight against Multiple Myeloma.

28 May, 2009

Finding Something That Chills!

Hamada continues much the same, sleeping his way through most days, bless him. He is trying to conserve/find some energy for a forthcoming special event. Son Matt's
40TH Birthday, when the whole family will be here for a long weekend. We hope to make this a very special occasion and so we need Hamada, if he can of course, to be able to join us - at a very special place, for the evening celebrations. So fingers crossed for that.

I have recently been playing the new CD of Melody Gardot, this music of the 'sleepy Jazz type' that Hamada and I love, it seems to have such a relaxing effect on us both, we imagine dancing together as we did just a few years ago - see my poem "We Dance Again" below.

If you would like something to take your mind of 'horrid things' and I know many readers here do. Try the lovely sound of Melody Gardot and her new CD "My One And Only Thrill" Listen to the enchanting "Our Love Is Easy" and the sensual track of the named album, "My One and Only Thrill" and the very delicious "Deep Within The Corners of My Mind" - I so wished I had written that! The wonderful orchestral backing which is quite perfect runs through these tracks, so if you are stressed and worried, this is indeed, very 'good medicine' as it takes you easily on a much needed journey...

21 May, 2009

Susie's BBC Radio Interview with Judy Theobald

You can hear Susie reading on the third anniversary of Hamada's Diagnosis with Multiple Myeloma "I Write for You" and also the full BBC radio interview on the Judy Turnbald Morning Show on, http://www.susiehemingway.com
Under the Categorie - Site News

~ My wonderful congratulation flowers shown above ~

12 May, 2009

Life Is Fragile..Love Is Not - by Susie Hemingway

So spins our lives in turning chasms of change,
blurred and slippery as water
cascading over slimy rocks,
my wordless gesture in trouble times
invades your worried mind,
fiercely as the brushing hand to restless horse,
my smile confirms, to reassure your fretful gaze.
As hell as life sometimes appears,
in daily disclosing of newer pain,
my heart swoops and suffers,
my misty eyes my soul knows
life is fragile but love is not.

As birds black and shiny soar
to 'crow' in noisy rattle begin,
another nasty turn like sin,
to stab in pain, to etch within,
to reproduce in making bold this latest evidence,
dismissing in magicians wand, I wave again
I wave again...
To struggle and plunge I flounder there
impeach myself but always care,
frightened damp and cold
my misty eyes, my soul knows,
life is fragile, but love is not
love is not...

All Rights Reserved @ May 2009

Excerpt from United Press:

Your poem " Life Is Fragile - Love Is Not" has been recognized as one of the best poems this year and to mark this fact we wish to publish it to a new book called Whispers On A Breeze a showcase of the best work of a group of Poets. This book will be ready for publishing soon can be ordered at all good bookshops.


Hamada continues comfortably, still sleeping for about sixteen hours per day. He enjoys all his meals and eats remarkably well. For some time I have been looking at the benefits of 'Curcumin' and the very encouraging documentation regarding this supplement for sufferers of many ailments, in particular Multiple Myeloma. Of course it is always a difficult choice to make when deciding to try any addition to the already large amount of maintenance drugs taken daily and the advise of consultant must always be taken into consideration. For many, these extra supplements do seem to help and we were very thoughtful and a little excited about something that could potentially help Hamada. The biggest concern was of course his ailing Kidneys, although much better than at diagnosis, are still a cause for concern. Also the greatest factor, his extremely low Platelet counts (44).
So today when receiving information from the Scientific Panel of a leading distributor of Curcumin here in the UK, confirming that this supplement does indeed have an anti platelet effect and the potential for exacerbation of low platelets,we have decided not to pursue Curcumin further.

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