tag:blogger.com,1999:blog-6746758025241905112.post5555673474586532706..comments2023-12-20T06:27:59.760+00:00Comments on Susie Hemingway - A Power Within.: What A Roller Coaster!Susie Hemingwayhttp://www.blogger.com/profile/00936508273837230613noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-6746758025241905112.post-90520617161485504432010-03-29T16:20:31.216+01:002010-03-29T16:20:31.216+01:00Hi Susie,
I have followed your blog for a long tim...Hi Susie,<br />I have followed your blog for a long time...yours was the first one I found when my dad was diagnosed with MM back in 2007. I hope Hamada is feeling better, so glad you were able to stay at home and avoid being admitted to the hospital. I read about the night sweats, my Dad had a horrible time with these, I always felt the steroids were more responsible for those than the velcade...thinking of you and Hamada. Thank you for sharing your journey, and for sharing your beautiful poetry.Unknownhttps://www.blogger.com/profile/00457553520158557301noreply@blogger.comtag:blogger.com,1999:blog-6746758025241905112.post-91443381620065670642010-03-24T16:03:47.900+00:002010-03-24T16:03:47.900+00:00Oh my...it is so hard to have things heaped upon y...Oh my...it is so hard to have things heaped upon you when the plate already is so full... praying and intending for Hamada to have a good response to the antibiotics and more restful nights for you, though sleeping with one eye open is never restful! I can recall a time when I slept with my hand on my beloved chest to make sure he was breathing all night long...not the best way to sleep! Thinking of you both...Sandyhttps://www.blogger.com/profile/02265922352726668243noreply@blogger.comtag:blogger.com,1999:blog-6746758025241905112.post-78955505977065128052010-03-24T14:56:15.822+00:002010-03-24T14:56:15.822+00:00Susie, I am so sorry that chemo had to stop. I h...Susie, I am so sorry that chemo had to stop. I hope Hamada recovers from his infection very quickly so that he can start receiving the chemo again. My prayers are with you, Hamada and the family. May God bless you with comfort and peace. xxJoan Kahleynoreply@blogger.comtag:blogger.com,1999:blog-6746758025241905112.post-45684505872371675862010-03-24T13:27:47.524+00:002010-03-24T13:27:47.524+00:00Thank you very dear Ladies, how kind you are to ke...Thank you very dear Ladies, how kind you are to keep-up with all that is happening our end and for taking time to enter your lovely messages of support, so much appreciated. It's been a rough couple of weeks and as the carers amongst you know, rather frustrating and most tiring with the endless trips back and forth and many distrurbed nights.<br />Hamada seems a little better today but a close eye never stops watching him.<br /><br />@ Elizibeth: Yes Hamada did have <br />the dreadful cough that so many seem to have at the moment, this makes visiting the clinics at Hospital, fraught with danger for those there too! He does wear a mask to protect him as much as possible.<br /><br />@ Diane <br />Hamada has had both Hickman and PICC lines twice before and he was so happy to get rid of them because of the flushing and care needed to maintain them well, another trip weekly to the Hospital, what with three clinics and the medical day unit for this procedure, he just does not have this energy but I fear that this will be the route again shortly as viens are poor now, although the problem this time, was that the blood would not flow.<br />We march on (smile)xSusie Hemingwayhttps://www.blogger.com/profile/00936508273837230613noreply@blogger.comtag:blogger.com,1999:blog-6746758025241905112.post-50274789641113735342010-03-24T12:43:36.038+00:002010-03-24T12:43:36.038+00:00I hope that Hamada's infection gets under cont...I hope that Hamada's infection gets under control quickly. Have they considered putting in a PICC line or a Hickman catheter so they don't have to 'stick' him each time? We've had issues with finding a good vein before, too, so Vern prefers to have the catheter which allows blood to be drawn easily for labs and Velcade or other drugs to be infused. I'm able to do the daily flushes at home to keep the line viable.<br /><br />Happy he was allowed to come home with you. You take care of yourself, too, Susie.<br /><br />Dianne in NevadaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6746758025241905112.post-33928945835504518412010-03-24T10:38:16.932+00:002010-03-24T10:38:16.932+00:00Oh dear! That is the trouble with Velcade - you c...Oh dear! That is the trouble with Velcade - you can only take it if you are well enough to cope. But its good you are able to have Hamada at home - I am sure he will get over the infection faster in his own bed!Roobeedoohttps://www.blogger.com/profile/02395340950409421904noreply@blogger.comtag:blogger.com,1999:blog-6746758025241905112.post-18068448716930150962010-03-24T10:16:52.973+00:002010-03-24T10:16:52.973+00:00Sorry to read about this nasty setback, Susie, but...Sorry to read about this nasty setback, Susie, but glad that Hamada was allowed to go home. Being at home with you will surely speed up his recovery. <br />Fingers crossed and best wishes from Italy! :-)Margarethttps://www.blogger.com/profile/03385172847056220263noreply@blogger.comtag:blogger.com,1999:blog-6746758025241905112.post-2685195020202289822010-03-24T07:21:29.254+00:002010-03-24T07:21:29.254+00:00Prayers continue daily for you both. I hope the an...Prayers continue daily for you both. I hope the antibiotics start to work soon.<br /><br />Does Hamada have the dreadful cough that seems to be accompanying many chest infections in our area at the moment ?Elizabeth @ The Garden Windowhttps://www.blogger.com/profile/00274788007550318693noreply@blogger.comtag:blogger.com,1999:blog-6746758025241905112.post-28042128453851116572010-03-23T23:10:47.559+00:002010-03-23T23:10:47.559+00:00Oh no!
So sorry to hear about this, Susie.
Sending...Oh no!<br />So sorry to hear about this, Susie.<br />Sending healing thoughts and keeping Hamada & you in my prayers!<br /><br />That picture is so beautiful!<br /><br />Margie xMargiehttps://www.blogger.com/profile/14433759763753850718noreply@blogger.com