~ Poems of Love ~

The following poems have been written by me, for my husband Hamada, who suffered from Multiple Myeloma [IgG Kappa] a cancer of the plasma cells, which are found in the bone marrow. After many months of chemotherapy, contracting pneumonia twice, once given only twelve hours to live and having three bad fractures to his spine and also showing in his Pelvis, he made it to four years seven months. The Multiple Myeloma attacked his Kidneys first showing at diagnosis in May 2006 leaving Hamada only a small percentage of kidney function. He never complained, using his most amazing smile even when I knew he had severe pain. Hamada underwent a Stem Cell Transplant using his own 'harvested stem cells' . During October 2007 he spent seventeen days in the "Centre For Clinical Haematology" at Nottingham City Hospital UK. where he achieved this transplant. We had a scare at six months after transplant, when told 'the beast was back' but subsequent tests showed a partial remission. Again in early 2009 it was confirmed that Hamada was out of remission He fought again during 2010 with newer chemo type drugs. First with Velcade and then with Revlimid but to no avail. His Kidneys were failing further and Hamada chose not to have dialysis. This blog contains poems and updates, written for Hamada, telling of our life together.
Now a beautiful book has been published, see http://www.susiehemingway.com/books/
showing Hamada's personal fight against Multiple Myeloma in the first fifty 'poems of love' written by me his wife. I hope you like these poems of love and also 'our story' dedicated to Hamada, who passed away peacefully at home on 23 November 2010 after a most courageous fight against Multiple Myeloma.

24 April, 2008

Going For The Cure

I have just finished reading the engrossing "Going for the Cure" by Francesca Morosani Thompson MD, which although written in 1989 is an inspiration to any patient with Myeloma.
In 1986 Francesca Thompson -a 42 year old orthopaedic surgeon, wife and mother - was diagnosed with Multiple Myeloma. In February 1987 she became the first patient with Multiple Myeloma to receive an anti-body treated autologous bone marrow transplant. It is written in the form of a present-tense, first person journal. There are many valuable insights about life as a myeloma sufferer and about the process of a stem cell transplant. I found it uplifting and compelling.
Can be found at The International Myeloma Foundation Los Angeles. or http:// www.amazon.com

21 April, 2008

Rescuing Providence

To spur Hamada onwards a book written by Lieutenant Michael Morse of Providence, Rhode Island, called -Rescuing Providence -and signed especially for him, winged it's way across the pond this week. Michael Morse has been an EMT and firefighter for 16 years. A highly decorated Lieutenant in the Providence Fire Department, where he works on Rescue 1. This book contains short stories of 34 nonstop hours in the life of a big-city fireman/emergency medical technician. Hamada will enjoy reading how these brave men and woman make such a difference in people's lives. We too have much to thank our ambulance service for, in the saving of Hamada's life on two occasions, and I respectfully thank Lieutenant Michael Morse for his wonderful words of encouragement and lovely comments and all good wishes.

11 April, 2008

Just a Little Update

Hamada's still smiling but,

Yesterday's visit to Lincoln Hospital, did not bring us much joy. Hamada's current blood tests show the white blood cell reading, much to our disappointment, has dropped back yet again to 1.05 and his Haemoglobin is at a poor 10.08 He is now to have twice weekly injections of Neupogen - Filgrastim - in an effort to treat the Neutropenia and help increase the number of white cells, which in turn will help his body to fight infection . Now look here white Blood Cells!do your work and just get out and fight!!

06 April, 2008

Secrets Of The Soul - by Susie Hemingway

In purple see the changing light
the stormy days to passive nights,
in secrets of the soul display
a campaign like tinders falls astray,
and yet, as seasons daily change
you adjust to fight on moving range.
In repetition all a part
this set-piece for you
that's learnt by heart.

I watch thee, I watch thee,
intrepid, fearless
and monumentally brave,
to eagerly face another day,
this gargantuan task,
in febrile waves you make,
the tiny steps you sweetly take.
This rape upon your ravished frame
comes back in haunting waves again,
this personal onslaught so powerfully dealt
in secrets of the soul displayed,
the campaign like tinders falls astray.

And yet in courage you edify
and make my heart to often cry...

@ Copyright 2008

04 April, 2008

What a great Site !

A really special web-site for all sufferers and carers of people with Cancer can be found at http://www.whatnow.org.uk/
A great place to meet and make friends with others, who have also been affected in some way by Cancer. This most informative site has some great blogs, videos, people to meet, forums for friendly chats and some wonderful photos of celebrities from Mary McCartney, showing pictures of Darcey Bussell, Jude Law, Sir Paul McCartney, Gordon Ramsey and more.
This great web-site is certainly worth a look. I do recommend it.

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