28 September, 2010
21 September, 2010
18 September, 2010
My thoughts and prayers today are with Dianne and Vern West of Nevada USA. Vern who was diagnosed with MM at the same time as Hamada, has endured so much with courage and such great dignity.
We have supported each other along the way with this fight against the 'beast', through many trials and tribulations for both dear men during this past four + years. Dianne fighting every step of the way to obtain the very best care for her beloved husband with such support and so much love and goodness, while with courage and wise words supporting others like us along this journey.
Today Vern entered into hospice care and my heart goes out to them both, with love and hope that in the coming days they find the eternal peace that they so deserve.
Vern and Dianne visited England some time ago for their 30th Wedding Anniversary and so I post these photos taken yesterday at the highest point 'Red Hill' near my home; as I blew a prayer into the wind, to cross an ocean, in honour of them both.
addendum: Vern West passed away on the 22nd September 2010 "eternal rest give unto him Oh lord and let perpetual light shine upon him " His loving wife Dianne was by his side.
Views from Red Hill: Photo by Susie Hemingway.
All Rights Reserved 2010.
12 September, 2010
09 September, 2010
Just the best news received today at Hamada's consultation at Lincoln. I felt he was doing well (see below) but to my surprise, the Para Protein results were through and a wonderful drop of 5 !! was recorded and is now at 16. All bloods have improved some. So with bated breath dare I say it looks like Revlimid is working it's magic! This was such a surprise to us, as we did not think we would get these results so soon. Hamada has had just one course of Revlimid so far.
I can hear him in the other room snoring as he has a little nap and if I peep I am sure there is a smile on his face, as there was on the consultant's today. How wonderful is this, such a long time since I have been able to write something positive and far too long since we have had any good news to report. What a warrior!!
08 September, 2010
A short update to say that Hamada has now completed his first course of Revlimid and all seems to be progressing well. No need for additional Platelets which was rather a problem with Velcade, bloods counts are not too bad. We attend Lincoln''s Haematology again tomorrow for the weekly blood tests and then the completed months consultation. Important bloods from last week are shown below for those who follow such things.
Neutrophils 4.99 ( big improvement here)
Hamada continues with all other maintenance drugs and now added daily aspirin also trice weekly Filgrastim and once weekly Aranesp.