~ Poems of Love ~

The following poems have been written by me, for my husband Hamada, who suffered from Multiple Myeloma [IgG Kappa] a cancer of the plasma cells, which are found in the bone marrow. After many months of chemotherapy, contracting pneumonia twice, once given only twelve hours to live and having three bad fractures to his spine and also showing in his Pelvis, he made it to four years seven months. The Multiple Myeloma attacked his Kidneys first showing at diagnosis in May 2006 leaving Hamada only a small percentage of kidney function. He never complained, using his most amazing smile even when I knew he had severe pain. Hamada underwent a Stem Cell Transplant using his own 'harvested stem cells' . During October 2007 he spent seventeen days in the "Centre For Clinical Haematology" at Nottingham City Hospital UK. where he achieved this transplant. We had a scare at six months after transplant, when told 'the beast was back' but subsequent tests showed a partial remission. Again in early 2009 it was confirmed that Hamada was out of remission He fought again during 2010 with newer chemo type drugs. First with Velcade and then with Revlimid but to no avail. His Kidneys were failing further and Hamada chose not to have dialysis. This blog contains poems and updates, written for Hamada, telling of our life together.
Now a beautiful book has been published, see http://www.susiehemingway.com/books/
showing Hamada's personal fight against Multiple Myeloma in the first fifty 'poems of love' written by me his wife. I hope you like these poems of love and also 'our story' dedicated to Hamada, who passed away peacefully at home on 23 November 2010 after a most courageous fight against Multiple Myeloma.
Showing posts with label Revlimid. Show all posts
Showing posts with label Revlimid. Show all posts

09 September, 2010

Further To The Post Of Yesterday.

Just the best news received today at Hamada's consultation at Lincoln. I felt he was doing well (see below) but to my surprise, the Para Protein results were through and a wonderful drop of 5 !! was recorded and is now at 16. All bloods have improved some. So with bated breath dare I say it looks like Revlimid is working it's magic! This was such a surprise to us, as we did not think we would get these results so soon. Hamada has had just one course of Revlimid so far.

I can hear him in the other room snoring as he has a little nap and if I peep I am sure there is a smile on his face, as there was on the consultant's today. How wonderful is this, such a long time since I have been able to write something positive and far too long since we have had any good news to report. What a warrior!!

13 August, 2010

A Short Update.

After a rather long visit with Hamada's consultant at Lincoln yesterday it was a general consensus between us that Hamada would start Revlimid today and the consent forms were duly signed. His HB and Platelets readings were a little better but Para Protein continues to rise.

His monthly regime is as follows:
Lenalidomide ( Revlimid) 15mg every other day. For 21 days - weeks rest.
Dexamethasone 2mg x10 on two days per week for three weeks - weeks rest.
Aspirin 75mg Daily
Allopurinol 100 mg Daily - which is already prescribed in maintenance tablets.
Lansoprazole 30mg - which is already prescribed in maintenance tablets.
Filgrastim Injections 300Micrograms/0.5ml on three days per week.

Hamada is to have weekly blood tests every Thursday at Lincoln and I will ring in the afternoon to check readings and then this will ensure that bloods are carefully monitored and extra platelets or treatments can be received on the Friday should they be needed.
I know you all join me in wishing Hamada all the luck in the world that this treatment will be the one to help reduce the Myeloma burden and thus give him more time with us.

Rose Photo: "Cleopatra" from my garden.

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