Great news yesterday as we heard that the drug advisers have changed guidance on Lenalidomide, also known as Revlimid. Revised draft guidance has agreed access to the treatment for myeloma sufferers, under a cost -sharing deal where the drug company will pick up the cost after two years. This is the first guidance from NICE to be revised after the new rules, designed to be more flexible in judging treatments, offering survival benefits in terminal conditions. This latest recommendation is out for consultation until the 20th February.
You can read the more on http://news.bbc.co.uk/1/hi/health/7859053.stm and also more from the wonderful http://www.myeloma.co.uk/ who have fought so hard for this to come about.
It is indeed the most wonderful news.
31 January, 2009
Deal On Myeloma Drug !
09 January, 2009
In Quiet Days - by Susie Hemingway
In quiet days as fearsome news
imparted so gently, comes to view,
your face so stoic hardly moves
my accepting warrior, my hero true.
The look that really says it all,
and although you can't, your standing tall,
as beautiful hand is placed on mine,
I bite my lip, as the clock chimes.
Say nothing yet, let's think it through
for actions now will be askew,
decisions made in quiet ways, will pave
for you another day.
The reality that stings my eyes
the sadness as results arrive,
in watchful bide my thoughts of you,
your boldness gallant fighter true.
In quiet days of misty cold
our world is smaller, but not letting go,
this 'beast' that creeps within our realm,
will, with courage, be crushed down.
My accepting warrior, my hero true...
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