We had a wonderful weekend at "Hemingway " celebrating my sister and brother-in-laws Pearl Wedding Anniversary more about that on www.susiehemingway.com Hamada so enjoyed having all the family here and we had such fun with garden games and a great BBQ. We erected a large Marquee in the garden so that nothing would be spoilt, with our sometimes, rather odd weather. Jo sang for us and so did Manu which was just wonderful. Hamada ( who never smokes cigarettes) enjoyed a smoke of Apple and Mint sharing a'Shisha' pipe with Jo, taking him back to Alexandria, Egypt. For a small while Hamada looked pain free and very relaxed. It was a joyous day and created such lovely memories for us all.
On Tuesday I received a telephone call from one of Hamada's team at Lincoln Hospital, saying that the results of the last Bence Jones Test had at last been returned. This, contrary to the last reading, showed that the results were very good! It appears that the marker is again very faint indeed! We are not going to get too excited by this, our lives are up and down enough with all these tests and medical problems we face everyday as it is, although we really are tempted to do so. I am aware that this is a very difficult test to read at the lower end of the scales and that mistakes can be made at this level. Still with this reading now at 0.01 does that mean that Hamada could just be hanging on to his remission or not? (It's only been eight months since Hamada's Stem Cell Transplant)
Please all you very knowledgeable guys out there, I would be grateful to know what you think. We are not returning to the Haematology Clinic until July 3 when we will discuss this in full.
19 June, 2008
A Great Weekend And A Confusing Phone Call !
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4 comments:
I'm not knowlegable at all about these things, but I do think Hamada is in remission, and I refuse to think otherwise!
Yes Michael, I need to believe this too' I have my fingers and toes crossed that the remission is still there - he does look much better, and apart from the pain is more mobile - thanks for your confidence as well, it all helps so much.
The important thing is to keep monitoring the numbers. That is such a tiny tiny amount, but it is still detectable - so things are great but you DO need to make sure the doctors run the test regularly. And make the most of feeling well! Good news!
Yes, we intend to do just that and keep a very close eye on everything but how confusing that it is so up and down each time? Bence Jones tests do seem hard to understand. We are making the most of this time once again, that Hamada is well and we rejoice everyday that this is so.- best wishes to you Roobeedoo and thank you X
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