~ Poems of Love ~

The following poems have been written by me, for my husband Hamada, who suffered from Multiple Myeloma [IgG Kappa] a cancer of the plasma cells, which are found in the bone marrow. After many months of chemotherapy, contracting pneumonia twice, once given only twelve hours to live and having three bad fractures to his spine and also showing in his Pelvis, he made it to four years seven months. The Multiple Myeloma attacked his Kidneys first showing at diagnosis in May 2006 leaving Hamada only a small percentage of kidney function. He never complained, using his most amazing smile even when I knew he had severe pain. Hamada underwent a Stem Cell Transplant using his own 'harvested stem cells' . During October 2007 he spent seventeen days in the "Centre For Clinical Haematology" at Nottingham City Hospital UK. where he achieved this transplant. We had a scare at six months after transplant, when told 'the beast was back' but subsequent tests showed a partial remission. Again in early 2009 it was confirmed that Hamada was out of remission He fought again during 2010 with newer chemo type drugs. First with Velcade and then with Revlimid but to no avail. His Kidneys were failing further and Hamada chose not to have dialysis. This blog contains poems and updates, written for Hamada, telling of our life together.
Now a beautiful book has been published, see http://www.susiehemingway.com/books/
showing Hamada's personal fight against Multiple Myeloma in the first fifty 'poems of love' written by me his wife. I hope you like these poems of love and also 'our story' dedicated to Hamada, who passed away peacefully at home on 23 November 2010 after a most courageous fight against Multiple Myeloma.

26 February, 2009


Hamada has continued quite well since the last consultation at Lincoln. He sleeps a lot, managing to get up for lunch, with a little siesta in the afternoon. He then enjoys to read or watch some television in the afternoon and evenings. He loves looking across the meadow from our windows, now the snow has gone and Spring very slowly comes once again to the Village. We have managed with some great help from our dear Brother-In-Law to visit "Orchard End" for lovely meals or teatime treats, cooked so beautifully by my sister Jenny, how lucky we are to have them here. I have been looking and reading about other treatments for Hamada and will ask for a second opinion at our next clinic visit. Thank you, for the many mails of alternative ideas for further treatment. I will ask about all of these and perhaps the right time to implement them, should the consultants think they would be suitable for him. I must ensure there is nothing more that can be done for Hamada. He is very content with his 'quiet life' is in no pain when sitting still or lying - his medicament's cover that - which is a blessing, but he does struggle with pain on moving. It is very difficult now to get him in and out of the car and then so much of his precious energy is used up. We now look forward to the next visit in early March from our children - they do lift our spirits so.

Life is fragile but love is not....


Roobeedoo said...

Totally practical suggestion - have you seen those swivelling cushions you can get for cars? It allows the person to sit down and then is easily rotated to turn them to face the right way. I am not sure where you get them but your local occupational therapy department might be able to help?

Susie Hemingway said...

Thank you Roobeedoo, yes I will look into a 'special'swivelling cushion - we do carry a large silky cushion with us at all times - but it really is, the getting down low enough, not much strength to step up either (although a little easier in 4x4) but so much more difficult to sit low. Much better with another pair of strong arms.
Hope all is well with you.

zerofill said...


You may or may not have seen the forum I recently started that is 100% dedicated to Multiple Myeloma. Please take a moment to sign up, tell us your story, and support others like yourself. If you like the site please add a link to us as well... http://www.myelomaforums.com



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