After consultation this Thursday it has been jointly decided to adopt a wait and watch policy after the poor response from the three months treatment with the Chemotherapy drug Velcade.It was not successful for Hamada only reducing the PP(M-Spike) by 4 and since the finish of treatment this is now back to a whopping 16.9. It was sad that after twice weekly trips for the Velcade and sometimes many more with transfusions, when platelets dropped to a very low 22 and with clinic visits also to monitor kidney function it was indeed an exhausting time for Hamada.
Current readings:
Cret 342 - HB 10.1 - WC 2.4 - PP 16.9 and Platelets a whopping 69(remember they were 22).
Although these readings look awful they are not that bad for Hamada and his Doctor used the word stable, certainly a word not heard for many months! Not a word I would use but there we go. We are to return in four weeks time and the plan is to start Revlimid when after close monitoring they deem it the right time. The worrying high PP does concern me so, I spoke to the consultant about this but he is adamant that Hamada needs time to recoup before continuing his fight. While I respect this, they have assured me they will monitor very closely indeed. It's not satisfactory, still what really is with MM nothing that I can see! Hamada is his always cheerful self, the most delightful patient and as the picture here shows a very much loved Grandpa. My best wishes to all who read this.
Manu and Grandpa.
26 June, 2010
Time For A Little Update I Feel.
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8 comments:
Lovely photo for your family album!
Like the Hydrangea, Hamada looks very robust and still happy in that delightful shot with your grandson. We can continue to intend the healing is happening in ways we cannot imagine and I align with any positive intention you have - the power of two is more than twice! Thinking of you both and hugs across the sea!
What a beautiful photo of Hamada and your grand daughter.
I completely understand the frustration with the waiting game.
After so many visits with so many specialists, I have come to learn to put your trust in particular ones. We are in that wait and see hold mode.. seems like we should do something.. but that word "stable" came up as well.
Be well Susie and give your Hamada warm hugs..
Oh, gosh, what a gorgeous photograph.
You are your lovely husband are on such a difficult journey, but my goodness, what grace you both have. I send both you all my prayers and blessings.
Cheers!
Jo
"Stable" is good. I am beginning to realise that numbers are not everything - it's how the patient is feeling. And he is certainly LOOKING good!
Hi Susie, thanks for stopping by. Yes Hamada does look good. He is so handsome anyway. I think stable is a good word too. Better going backwards. Your faith is so strong You will make it together. Good to hear from you. Blessings
QMM
I understand how you are feeling I think. Yes stable is better than getting worse, but I also know how frustrating it is to feel time slipping by while the doctors do nothing. We don't want our loved ones suffering from the treatment, but personally I fear the effects of the myeloma far more.
It's a great photo!
I pray that Hamada's counts come back up so that treatment can resume.
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