~ Poems of Love ~

The following poems have been written by me, for my husband Hamada, who suffered from Multiple Myeloma [IgG Kappa] a cancer of the plasma cells, which are found in the bone marrow. After many months of chemotherapy, contracting pneumonia twice, once given only twelve hours to live and having three bad fractures to his spine and also showing in his Pelvis, he made it to four years seven months. The Multiple Myeloma attacked his Kidneys first showing at diagnosis in May 2006 leaving Hamada only a small percentage of kidney function. He never complained, using his most amazing smile even when I knew he had severe pain. Hamada underwent a Stem Cell Transplant using his own 'harvested stem cells' . During October 2007 he spent seventeen days in the "Centre For Clinical Haematology" at Nottingham City Hospital UK. where he achieved this transplant. We had a scare at six months after transplant, when told 'the beast was back' but subsequent tests showed a partial remission. Again in early 2009 it was confirmed that Hamada was out of remission He fought again during 2010 with newer chemo type drugs. First with Velcade and then with Revlimid but to no avail. His Kidneys were failing further and Hamada chose not to have dialysis. This blog contains poems and updates, written for Hamada, telling of our life together.
Now a beautiful book has been published, see http://www.susiehemingway.com/books/
showing Hamada's personal fight against Multiple Myeloma in the first fifty 'poems of love' written by me his wife. I hope you like these poems of love and also 'our story' dedicated to Hamada, who passed away peacefully at home on 23 November 2010 after a most courageous fight against Multiple Myeloma.

17 October, 2010

Oh This Rollercoaster!

Further to the post below: On Friday afternoon we received two calls from Lincoln Hospital, one from the Haematology Department and one from the Renal Care Support Team both informing us that Hamada's last cretinine blood level has lowered to 423 making his eGFR now about 12. Yes, a slight improvement! The Urea has also lowered from 18 to 15.3 (which is better)

The Heamatology Consultant now wishes to see Hamada in six weeks! he is sending a letter to confirm this even though Hamada had accepted it completely and was most agreeable, not to attend more clinics. So God willing maybe, just maybe, once the Revlimid and Aspirin leave his body, the kidneys may improve enough to continue with more MM treatment.

I am sure there are many who understand how hard these changes are to recieve from day to day. As a Carer of someone much loved, I go from being saddened to the core of my being, trying so hard to keep Hamada cheerful and with at least some hope. To being so elated that I spend my days dancing around like some demon mad woman attached to my iPod forgetting to buy Vegetables and buying Lilies instead! It is nobodys fault and I blame noone, it is as it is.

Yet, this rollercoaster of emotions is so very hard to deal with but I do so love being right about this, certainly for the time being at least.

If the Revlimid and Aspirin leave the body could it restore the kidneys enough?!!

9 comments:

goodbloodbadblood said...

Hi Susie;

You've got me wondering about the music on your iPod! Dance away...

Michael Morse said...

A heartfelt sigh of relief from Providence. Hope you felt it!

feresaknit said...

Yes!!!!!! A move in the right direction - It's fantastic! :D xx

Roobeedoo said...

PLEASE don't eat the lilies!
Good to hear good news - long may it continue!

Susie Hemingway said...

@Goodbloodbadblood: You name it I love it -Yes, music is VERY important in my life and brings me great comfort.Everything from classical,music from shows, opera, through jazz, country and pop. I love it all and yes it is true that I dance my days through housecleaning, cooking and working in the garden, just my kind of keep fit.I also do yoga and small weights and yes all to music!
Stay well over there.

Steven L. Ritter said...

Susie:

Thank you for your kind comment on my blog. Here is my prayer that all continues to improve... It is a roller coaster for sure.

Prayers and support from California USA!!!!

Susie Hemingway said...

fingers crossed now feresaknit that all continues to improve - keep well

Susie Hemingway said...

Thanks Mike and all at Providence,yes we felt it !!!Thanks

Susie Hemingway said...

Roobeedoo: You can't make soup from Lilies or can you !!!! lol Stay well now as it's getting rather cold.

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