As all tests were returned or done last week, we were seen very quickly at the Haematology in Lincoln Hospital yesterday. This appears to help save time for the Consultant with his study of blood results and checks of readings etc and although this involves two journeys, quite long ones for us. It is more preferable than the normal long waiting time for results to come through from the labs. Having found an improvement here, now for the big moan. The rather small car park for the disabled which is nearer the department, was completely full once again( that is sad in itself) After driving round for a while I had to concede, that the only place I could find, was miles away from the clinic we needed to attend. Struggling with the wheelchair in and out of the car is one thing. I am very physically fit but still it was most challenging for someone in their sixties to then push up the long hill leading to the Haematology department and certainly impossible for someone a little less stronger than I! It often appears strange to me, that the clinic where people have the most needs, is the furthest away! Very bad planning indeed, I suppose I could have weaved my way through all the miles of hospital corridors and up lifts but even my legs get tired sometimes! No wonder so many frail or unfit people have to rely on transport to and from their appointments, costing a great deal more with escorts in and out, than it would cost to make more disabled parking spaces - ah! I feel much better now for that wee moan.
All readings were much the same - very little change on all counts, except the dreaded para-protein (M-spike) which continues to climb and now at 13.09. Still,the consultants considered opinion, is that as Hamada is continuing well with no more pain than is usual for him and his Kidneys are holding well, that with all things considered, he should still not start Velcade yet and enjoy this respite, we are to return in December. The Doctor says to enjoy this good quality time and we intend to do just that!
Next week on the 8th of October it will be two years since Hamada's Stem Cell Transplant and we once again thank Prof N Russell and his wonderful team at Nottingham's "Centre of Clinical Haematology" for their expertise and for securing these past two years for Hamada. We continue with joy at each given day and try to make everyday as special as we possibly can.
*The above Photo was taken On September 26 2009
02 October, 2009
Posted by Susie Hemingway at 09:40