~ Poems of Love ~

The following poems have been written by me, for my husband Hamada, who is suffering from Multiple Myeloma [IgG Kappa] a cancer of the plasma cells, which are found in the bone marrow. After many months of chemotherapy, contracting pneumonia twice, once given only twelve hours to live and having three bad fractures to his spine and also now showing in his Pelvis, we have made it to three years! The Muliple Myeloma also attacked his Kidneys, first showing at diagnosis in May 2006 leaving Hamada only a small percentage of kidney function. He never complains, using his most amazing smile even when I know he has severe pain. Hamada has achieved a Stem Cell Transplant, using his own 'harvested stem cells' During October 2007 he spent seventeen days in the 'Centre For Clinical Haematology' at Nottingham City Hospital UK. where he achieved this transplant. We had a scare at six months after transplant, when told 'the beast was back' but subsequent tests showed a partial remission. Now once again in 2009 it has been confirmed that Hamada is out of remission. This blog contains poems written for Hamada, telling of our life together, also updates on Hamada's journey, and his personal fight, against Multiple Myeloma :Info @ http://www.myeloma.org.uk/ I hope you like these poems of love and this site is dedicated to Hamada.

12 May, 2009

Up-Date

Hamada continues comfortably, still sleeping for about sixteen hours per day. He enjoys all his meals and eats remarkably well. For some time I have been looking at the benefits of 'Curcumin' and the very encouraging documentation regarding this supplement for sufferers of many ailments, in particular Multiple Myeloma. Of course it is always a difficult choice to make when deciding to try any addition to the already large amount of maintenance drugs taken daily and the advise of consultant must always be taken into consideration. For many, these extra supplements do seem to help and we were very thoughtful and a little excited about something that could potentially help Hamada. The biggest concern was of course his ailing Kidneys, although much better than at diagnosis, are still a cause for concern. Also the greatest factor, his extremely low Platelet counts (44).
So today when receiving information from the Scientific Panel of a leading distributor of Curcumin here in the UK, confirming that this supplement does indeed have an anti platelet effect and the potential for exacerbation of low platelets,we have decided not to pursue Curcumin further.

1 comments:

Jenny Robson said...

Susie

I just want to say that I think you write the most beautiful letters. You manage to convey everything that is happening with clarity and with an immense amount of love for Hamada and all your family.

I do know that at times this is heartbreaking for you but to everyone you show courage and determination. Yes, you have become an expert in managing this horrible illness, not out of choice but out of love for your man. Sometimes you must be so tired but I've never heard you once complain for yourself.

I am so proud of you and just wanted to let you know.
Love Jenny

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