~ Poems of Love ~

The following poems have been written by me, for my husband Hamada, who suffered from Multiple Myeloma [IgG Kappa] a cancer of the plasma cells, which are found in the bone marrow. After many months of chemotherapy, contracting pneumonia twice, once given only twelve hours to live and having three bad fractures to his spine and also showing in his Pelvis, he made it to four years seven months. The Multiple Myeloma attacked his Kidneys first showing at diagnosis in May 2006 leaving Hamada only a small percentage of kidney function. He never complained, using his most amazing smile even when I knew he had severe pain. Hamada underwent a Stem Cell Transplant using his own 'harvested stem cells' . During October 2007 he spent seventeen days in the "Centre For Clinical Haematology" at Nottingham City Hospital UK. where he achieved this transplant. We had a scare at six months after transplant, when told 'the beast was back' but subsequent tests showed a partial remission. Again in early 2009 it was confirmed that Hamada was out of remission He fought again during 2010 with newer chemo type drugs. First with Velcade and then with Revlimid but to no avail. His Kidneys were failing further and Hamada chose not to have dialysis. This blog contains poems and updates, written for Hamada, telling of our life together.
Now a beautiful book has been published, see http://www.susiehemingway.com/books/
showing Hamada's personal fight against Multiple Myeloma in the first fifty 'poems of love' written by me his wife. I hope you like these poems of love and also 'our story' dedicated to Hamada, who passed away peacefully at home on 23 November 2010 after a most courageous fight against Multiple Myeloma.

12 November, 2010

Time For A Top Up.

After blood tests done yesterday at Lincoln County Hospital the results show that Hamada's platelet level is extremely low at 16. So this morning he will have a further blood test to check antibodies(I believe) and then his special ordered Platelets will come from Sheffield and he will receive these at the Medical Day Unit at Lincoln. A simply wonderful team there!
This transfusion will hopefully help make him more comfortable and halt the bleeding that can be seen in hundreds of little blood spots under the skin. Many on his face and even more on his arms and lower trunk. He will be at the hospital for at least three hours but this hopefully will save a weekend stay. Many thanks to our Jenny who has been assisting with another strong arm, bless you Jenny, what would I do without you X

Addendum: Hamada spent six hours getting transfusions today - on arriving his HB had dropped to 8 and his Platelets only 10 - he is back home now and feeling somewhat better.


Elizabeth @ The Garden Window said...

I hope all goes well and that you and Hamada are able to return home very soon.

Sandy said...

I know these are hard days for you and your dear Hamada, so just know that I am over here sending you energy and good thoughts to make it a little easier...

Dom and Nan said...

Susie- please know that you're in our thoughts- sending good vibes and prayers your way, honey.

Anonymous said...

So glad H is feeling somewhat better. I understand a top up can be a real boost. I've never needed a blood top up and the couple of times I had platelets they looked like... well we settled on apple sauce but that was the polite description we agreed on! xx

Barbara said...

Susie, as always, you and Hamada are in my thoughts and prayers, with all of our MM community. Hoping these platelets give the boost so needed. I always have those feelings of thanks to know that people give the wonderful, selfless gift of blood to help the Hamada's and Mark's of the world. truly a gift!! sending all the best and warm heartful thoughts

Margaret said...

The other night I dreamt that I was at your house, and Hamada was sitting around a table chatting away happily with some friends. Such a positive dream! :-)
I really hope that he continues to improve and feel better. Onwards and upwards!
Thinking of you both...:-)

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